Rare Disease Connect in Neurology (RDCN)

In the spotlight:

"Rare Disease Connect in Neurology (RDCN) "

2025 Silver Effie Winner

Effie is about awarding ideas that work, educating about effective marketing and showcasing the best work to enhance learning in our industry.

CAMPAIGN NAME

Rare Disease Connect in Neurology (RDCN)

CATEGORY

Multi-market: Health Effectiveness

CLIENT

UCB

LEAD AGENCY

Ogilvy Health UK

CAMPAIGN DESCRIPTION

The pharmaceutical industry operates in a highly regulated environment, where communication with patients is restricted and engagement with healthcare professionals must follow strict compliance rules.

UCB, a global biopharmaceutical company focused on neurological and autoimmune diseases, entered the treatment area of Myasthenia Gravis (MG), a rare neuromuscular condition that causes severe muscle weakness and fatigue.

Because MG is rare and highly heterogeneous, clinical expertise is limited and dispersed across countries, making knowledge exchange between specialists difficult. At the same time, the clinical landscape is evolving rapidly, increasing the complexity of disease management for healthcare professionals.

To address these challenges, UCB created Rare Disease Connect in Neurology (RDCN), a multi-market educational initiative designed to connect specialists, support peer learning, and improve access to high-quality medical education.

THE CHALLENGE

UCB is a global biopharmaceutical company focused on improving the lives of people living with neurological and autoimmune conditions. The company recently entered the treatment area of Myasthenia Gravis (MG), a rare chronic neuromuscular disease that causes severe muscle weakness and fatigue and significantly impacts patients’ daily lives.

MG is highly heterogeneous, with symptoms varying widely from patient to patient, often leading to suboptimal disease management and outcomes. At the same time, the rarity of the condition means that clinical expertise is limited and dispersed across countries, restricting opportunities for knowledge exchange and professional collaboration.

With few new treatments available over the past decades and a rapidly evolving clinical landscape, healthcare professionals faced increasing complexity in managing MG. Educational needs in this field had historically been underserved by both industry and professional societies.

Against this backdrop, UCB set out to connect the global expert community and create a platform for knowledge sharing, education, and collaboration to ultimately improve outcomes for people living with MG.

STRATEGIC APPROACH AND EXECUTION

Recognising that traditional medical education models were failing to influence clinical practice, UCB identified an opportunity to create value by fostering a stronger expert community around Myasthenia Gravis (MG). The strategy was to move beyond one-off educational events and build a continuous, peer-driven learning platform connecting specialists across markets.

This led to the creation of Rare Disease Connect in Neurology (RDCN), a multi-market, expert-led programme designed to address real clinical practice gaps through outcomes-focused education and collaboration.

At its core, RDCN combines an annual international meeting with ongoing learning modules to support continuous professional development. The programme is guided by an international steering committee of specialists who ensure that the agenda reflects the real needs of the MG community.

The educational design is needs-driven and structured around key practice gaps translated into measurable learning outcomes. Sessions follow evidence-based teaching methods, including case-based learning using real clinical cases from around the world, small-group peer discussions, and structured reflection to bridge the gap between theory and practice.

The annual RDCN meeting in Amsterdam brings together neurologists, neuromuscular specialists, nurses, pharmacists and patient representatives, creating a multidisciplinary environment focused on improving collaboration and ultimately raising the standard of care for people living with MG.

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Clear evidence of success:

  • 48% of participants committed to practice change
  • HCP Impact Score of 9/10
  • NPS of 78

RESULTS

  • 9.3/10 score for opportunities to connect with peers across markets
  • 9/10 intent to continue interacting with peers after the event
  • 8.8/10 reported improvement in knowledge
  • 9/10 intent to apply new knowledge in clinical practice
  • 100% of participants expressed intent to return in 2025.

WHY A SILVER EFFIE? Here's what the jurors said.

“Impressive results for a face-to-face event with clear objectives and targets. The insights and creative idea successfully created and nurtured a small, dispersed community of experts to improve patients’ quality of life.”

“The scale of the initiative is great, especially in rare diseases. The countries represented are a strong element (26 markets) as well as the continued efforts (already 5 years and aiming to pursue during 10 years). The retention is very good and is a sign of the quality of this peer-to-peer initiative.”

“Compelling context. The case clearly explains the MG landscape—rare, heterogeneous disease; dispersed expertise; limited historical education; and rapidly evolving treatment complexity. The rationale for a multi-market expert community is credible.”

"Clear and relevant challenge. The campaign tackled suboptimal care in MG due to poor education and lack of peer networks. This challenge was well-defined and tied to measurable gaps in clinical practice.”